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Links to literature

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Dr. Gil Wernovsky FAAP FACC Pediatric Cardiac Critical Care at Children's National Hospital

Creating a "Roadmap": Lifelong Care For Children Born with Congenital Heart Disease


UPDATED: The Neurodevelopment Consequences of Congenital Heart Disease

AHA Journals

Pregnancy in Women With a Fontan Circulation


Circulation: Cognitive Development After the Fontan Operation


Stem Cell Therapy for Hypoplastic Left Heart Syndrome


Hypoplastic Left Heart Syndrome New Insights (2007)

CHOP's Cardiology 2019 Conference Research Highlights

In Pediatric Heart Disease: Understanding Post-Fontan Risks, Improving Parental Bonding, and Video Telemedicine

SAGE Journals, World Journal for Pediatric and Congenital Heart Surgery, February 1, 2019

IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to Quality in Congenital Heart Disease

What is HLHS?

Here is a video from the doctors at CHOP showing how the HLHS heart functions. Subsequent videos describe how it is repaired.

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Centers for Disease Control

CDC Fact sheet

Here is a link to the CDC Fact Sheet that may help you understand Hypoplastic Left Heart Syndrome.