LATEST ADVOCACY OPPORTUNITIES THROUGH CONQUERING CHD!

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    • Home
    • Advocacy & Research
    • Support
    • Education
    • Apps & More
      • Mommi Wellness
      • MOD My NICU Baby App
      • 500 mg of Sunshine!
  • Home
  • Advocacy & Research
  • Support
  • Education
  • Apps & More

Links to literature

Dr. Gil Wernovsky FAAP FACC Pediatric Cardiac Critical Care at Children's National Hospital

Creating a "Roadmap": Lifelong Care For Children Born with Congenital Heart Disease


UPDATED: The Neurodevelopment Consequences of Congenital Heart Disease

American Academy of Pediatrics

The Care of Children With Congenital Heart Disease in Their Primary Medical Home


AHA Journals

Pregnancy in Women With a Fontan Circulation


Circulation: Cognitive Development After the Fontan Operation


Stem Cell Therapy for Hypoplastic Left Heart Syndrome


Hypoplastic Left Heart Syndrome New Insights (2007)

CHOP's Cardiology 2019 Conference Research Highlights

In Pediatric Heart Disease: Understanding Post-Fontan Risks, Improving Parental Bonding, and Video Telemedicine

SAGE Journals, World Journal for Pediatric and Congenital Heart Surgery, February 1, 2019

IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to Quality in Congenital Heart Disease

What is HLHS?

Here is a video from the doctors at CHOP showing how the HLHS heart functions. Subsequent videos describe how it is repaired.

Leisure

Special Heart

-Bret Baier

 Special Heart is a deeply touching personal story told through the eyes of journalist Bret Baier as he and his wife face the most daunting challenge in life – caring for their critically ill son.

Walk On Water

Walk On Water by Michael Ruhlman Described by one surgeon as “soul-crushing, diamond-making stress,” surgery on congenital heart defects is arguably the most difficult of all surgical specialties. Drawing back the hospital curtain for a unique and captivating look at the extraordinary skill and dangerous politics of critical surgery in a pediatric heart center, Michael Ruhlman focuses on the world-renowned Cleveland Clinic, where a team of medical specialists—led by idiosyncratic virtuoso Dr. Roger Mee—work on the edge of disaster on a daily basis. Walk on Water offers a rare and dramatic glimpse into a world where the health of innocent children and the hopes of white-knuckled families rest in the hands of all-too-human doctor

Centers for Disease Control

CDC Fact sheet

Here is a link to the CDC Fact Sheet that may help you understand Hypoplastic Left Heart Syndrome.

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