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Advocacy

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Pediatric Congenital Heart Association

Advocate for your heart warrior by learning about current policy priorities and attend the next national conference in Washington DC.  You can also find info on the 6th Summit on Transperancy and Reporting.

For more info, click here! 

Adult Congenital Heart Association advocating for adults with CHD comprehensive health care centers

Adult Congenital Heart Association

Children with CHD become adults with CHD. This organization is helping to bridge the gaps in care, providers, and long term outcomes. 

Find out the latest and the greatest here!

Children's Heart Foundation CHD research congenital heart defect

Children's Heart Foundation

Founded in 1996, The Children's Heart Foundation is the country's leading organization solely dedicated to funding congenital heart defect (CHD) research. Click here for more info!

research

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Pediatric Heart Network

Learn more about research results and available studies for young children and young adults with congenital or pediatric-acquired heart disease. 


The Pediatric Heart Network (PHN) was established in 2001 by the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH). It was created to help doctors and nurses design and carry out clinical research so that children with heart disease can receive high-quality, evidence-based care. This article describes the structure and tasks of the PHN, reviews existing studies and describes challenges and opportunities for pediatric research in congenital heart defects and acquired heart disease.

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Centers for Disease Control (CDC)

Congenital Heart Defects (CHDs) 

Research and Tracking


Accurately tracking congenital heart defects (CHDs) is the first step in preventing them and reducing their effect. Information from tracking systems provides a basis for research. Below is a summary of CDC’s CHD tracking and research work. Click here for the latest!

PHILADELPHIA, Feb. 18, 2019 /PRNewswire/

CHOP's Cardiology 2019 Conference Research Highlights